Wednesday, April 18, 2018

Stumpy And Bumpy


Have you seen these two characters?

Haha...This is me and the hubs, just living life...The struggles, the successes...All of it, together!

WHY?

Success only comes when you have support there to catch you when you fall...And when you have cheerleaders there to help encourage you when things are good.

I'm Bumpy....I have Neurofibromatosis.  
He's Stumpy...His left leg, below the knee was amputated over 10 yrs ago.

Stumpy&Bumpy 
Together we show whoever chooses to watch us, what life is like, when "things" get in our way of trying to be successful.  Overcoming the challenges life throws at us...while staying positive.

You will hear "WIN ANYWAY
&
THRIVE ON!

What does mean...?

It means finding the WIN in the losses....THRIVING and pushing through the struggles.  Setting an example of faith while committing to each other to support, no matter what.

If you havent had the chance to check us out...you can catch us on Facebook @Stumpy&Bumpy

Friday, April 6, 2018

Fear and Strength


I hate trying new things.  I do.  It's a fact.  When pushed out of my comfort zone, I shut-down...I retreat.  I cower. 

It's SCARYYYY out there....so if I don't HAVE to...I like to stay nice and cozy in my little area.

But....What does staying cozy get me...?  Besides warm feet...

Over the past 3 years, I have been forced out of my little cozy-zone....and into a position that I had very little confidence that I could be successful at...And to my surprise--I'm kinda loving it.

Some of you know, I am a manager at a very busy movie theatre...one of THE MOST busiest theatres in the country!!  I juggle scheduling, hiring, firing, training, and all the details of making sure your movie plays smoothly on the big screen.  I never - in a MILLION YEARS thought I would be capable of this kind of job...But, yet here I am.

Out of this fear I had, came this amazing strength and confidence...!!  Ask my hubby...I have changed, and grown, despite my resistance -- And there was a LOT of resistance!

What have I learned during this process..?  To STRETCH beyond myself!  To take a leap of faith and do something that pushes me....!  That's the ONLY way, I'm going to grow!

Just  doooo iiiitttt!





***I am launching this blog again...I know that it has slowly died, and I'm incredibly sad about it...My goal is to blog AT LEAST once a week...and try to build it back up.  I have a lot to talk about--So many things have happened--So get ready NF world...Kristi is BACK!

Thrive On!

Monday, December 11, 2017

Kristi Strikes Back

Update on Yoda!

Sometimes, things are not what they appear to be...Have you ever been told that..?  If I believed everything a doctor has told me..I'd probably be living secluded someplace...Never venturing outside.

I had a follow-up with an OB/GYN the other day....Almost exactly a month after a previous doctor diagnosed me with Yoda.  Measuring 9cm at that time, I was told that a hysterectomy was in my near future.

Finally - a reason for the pain.  I wasn't too upset about losing my uterus...I mean I have been blessed so much by it, so the fear I was feeling, wasn't about that...It was just about --well--losing a body part....The body part that had worked so hard for me.

This OB/GYN wanted to perform all her own tests and imaging and we found that the "mass" had grown 2 CM....That's A LOT.  She ordered a biopsy right away...

I was nervous.  Well...more like petrified!

The Dr. gave me a paper napkin and had me undress.

The nurse brought in the instruments...and I sat there for what seemed like hours....


So the doctor comes in...explains the procedure and gets to it....  I'll spare you the gruesome details...

During the biopsy a gush of "water'....What the heck!?!

Long story short....This "MASS" was fluid filled...like when a womb fills up with amniotic fluid when there is a baby....But I had no baby....just the fluid...A Blighted Ovum.  No Tumor. 

After another ultrasound showed the "mass" was now gone....the doctor explained how the human body is "freaky"...and does things that can't be explained.

I do still have the "friends" of Yoda....Fibroids...that will be watched...And we will wait for the biopsy to come back before doing anything else.

This is GOOD news.  It made me realize that medicine isn't perfect....Doctors aren't perfect.

Merry Christmas!!

Thursday, December 7, 2017

Yoda!


My dear friends.  This is Yoda. 

And so is THIS.


All 11cm of it.

'My' Yoda however, doesn't have a light saber.  No super powers.  And no wise or prophetic words.

It's a tumor.  A mass destroying my insides.  Making me in severe pain....And I need it GONE!

I first learned about Yoda several weeks ago.  After a VERY slow referral process, I am off to the OB/GYN to figure out how to best deal with Yoda.

I'm praying they just schedule surgery right then and there...I mean why wait...?  But I have this fear, that the DR is going to be like every-other-doctor and tell me that we are going to 'watch-and-wait'....God I hate that phrase.

It either means the DR has NO clue how to handle the situation....OR they have no clue WHAT the situation even is.

With Neurofibromatosis...I can't tell you how many times we have been told "watch and wait"...I mean...What the heck are we waiting for...?

I know I know...Not EVERY tumor is life threatening...And I also know, that for the MOST part, doctors have our best interest at heart....But at the same time....How can we do NOTHING!?!

I'm going in today - EXPECTING something more than 'watch-and-wait'.  I'll demand it, if I have to!

It's all about YOU taking control for YOU. Demand answers if you arent getting them!

I know - that in the end....this will result in a hysterectomy.  And I'm okay with this.  

Yoda...Sorry I am....Go, you MUST!

THrive On!




Thursday, November 16, 2017

It's a Tumor.


I don't like posting only when there is bad news, but this is where I am.   I had put off going to the doctor long enough.  I scheduled a full physical, including the dreaded vag check.

I have a history of pre-cancerous cells showing up, so I knew I had to do it.

Anyways, I'll spare you the details.

You're welcome.

I got sent to a specialist, who discovered a 9cm mass in my uterus.  I swear, when I saw the images, I thought the doc was tricking me, and it was a baby, instead of a tumor.



It's a tumor.  A baseball sized tumor.  Thanks for nothing Arnold!

So...what now?  Well, I have yet to see a specialist, or a surgeon...or anyone other than the doc who gave me the news....But what's likely....?  A hysterectomy.  A biopsy...Then - who knows..?

The thought of a hysterectomy makes me sad.  Noooo...Not because I want more kids....It's because I already began mourning the loss of something that gave me my beautiful children.  After 3 miscarriages and 6 full-term pregnancies....Me and my uterus have been through a lot....Like a LOT!

How could my uterus betray me like this...?

So, anyways....This is only PART of the reason I have been missing in action lately.  The other part is this job I have....It sucks of so much of my life....And after dealing with the job, my family, bills, etc etc...I feel like I literally have nothing left to give.

I miss writing.  I miss the cool comments I'd get.

But I promise...I will blog my way through this tumor situation...I think it is an important experience to go through, and maybe I can help someone along the way, going through the same stuff.

Thanks to my readers - who still check in on me and my blog...It means a lot!

As Always- Still THRIVING!
-Kristi